So what have I been doing with all my social media time??? Well I have found a site that I really really like. It is very similar to Cystic Life. Thanks Ronnie for pioneering this site its a great place for all of us. But I have been on this site called CF Connect. I LOVE it. As some of you may recall my new years thing was to help and give back to as many people as I could. I have found that this site is allowing me to do just that. I LOVE to give hopefully some good advice to fibros and cysters in our community. My goal is to make a difference in people's lives so hopefully I have done that with maybe some of you on here as well! Here is a response I have left a young Fibro. Please let me know what you think of it!!!
Here is his question..............
Hey I just joined this sight and I feel really lonely right now with my life style from cf. I was wondering what other people do to feel like u have a regular life. I'm 15 and I freshman in high school
Here is my first response..................
Welcome to this site! You will find many individuals like yourself on here. I hope you can make some really cool new friends on here.
But this disease can be scary and lonely. When you find places like this it really helps deal with this because you can find people who can relate to you.
I am a fibro myself 27 years old and I have been in your shoes before. We all can have a “normal” life with this disease. I know we have to do our treatments, go to the doctor often, maybe have a stay in the hospital etc. but that’s what makes us CFers one of the strongest people. WE have dedication and determination everyday we get out of bed (well at least I do). I want you to find something in your life that will motivate you and get you focused everyday. That can be your friends, your family, a girlfriend, or YOUR FUTURE!!!! So every time you get out of bed or go to the doctor or exercise focus on these things. I do this everyday I get out of bed. It really helps me get motivated and stay focused on what I need to do to be not just around for my family but HERE for my family.
You are about to embark on a really exciting and challenging time in your life. Being in high school you will be challenged to stay focused on your health. I want you to put your health first before anything else. The reason I am saying this NAMEis because the decisions you are about to make will effect your future for years to come. That is why I want you to find something or someone that will motivate you to no end.
I understand there will be times you will miss your treatment or not feel your best on certain days. We are all human and I expect this to occur for you. But it is at times like this how we react to these obstacles of missing a treatment or not feeling our best health wise. If you miss a treatment make sure you make it up as soon as you can. Do not put yourself in the hole by missing one and missing another my friend. The only way to stay on top of this disease is to stay focused and one step ahead all the time.
Sorry this is such a long reply NAME but I wanted to share with you my thoughts and my own experience. Keep a positive attitude and KEEP FIGHTING. I know you will have many dreams come true in your life.
I have a blog detailing my life living my dreams with CF. I hope you will find something to inspire you in there. If you ever want to chat let me know.
His Response back to me...................
Ya I know thanks it just I can't find anything to motivate me
Here is my second response..................
So I hope I have helped this young man in some way!!!
We have exchanged some messages and it seems like I am helping this young man :)
I hope you are all having a great weekend!! I promise I will be back on here again soon posting!