IVF

My wife (Maria) and I have been married for almost 5 years and we thought it was about time to start our family. Throughout our relationship we always said we wanted to have kids and wanted to have a child without CF. Maria and I never thought we would have trouble conceiving as I was fertile and we assumed everything was fine with her. (Side note, I was tested to see if I was fertile around the age of 18. Yes, I am fertile! I am one of the lucky 3% who are fertile....so NO needles for me :)

So before we went on this journey we wanted to have my wife tested to see if she was a CF gene carrier.  Maria is half caucasian and half asian and my CF Dr. believed that she would not be a CF gene carrier because of this genetic makeup. We wanted to be sure that she was not a carrier before we proceeded with our dream. Thanks to Ronnie Sharpe we found the best possible lab for Maria to be tested for carrier status.  She had her blood drawn and sent to Ambry Genetics where they sequenced her for over 1,000 CF genes.  After about a month the blood test revealed that she was in fact a CF gene carrier. The gene that she does carry is very rare and my Dr. had never seen this.  Believe it or not this gene was linked to her asian ancestry. Who would have thought!!!

This news was very shocking to us. We still wanted to have our own biological child and wanted to insure that he/she would not have CF.  In order to do this we would have to use Pre Genetic Implantation Diagnosis with IVF.  PGD is genetically screening an embryo before it is implanted via IVF. The embryo has a single cell removed at Day 3 and sent to Chicago. In order to accomplish this we had to setup a probe at the lab in Chicago. Maria and I had a blood sample sent to the lab as well as her parents cheek swab. From this a probe was created to test the embryos against to rule out which embryos would have full blown CF and which ones would be only CF carriers.  We of course would only implant the CF carriers.

Maria then had another test performed to see if she was fertile. The insurance company required this before we began IVF.  Her test results showed that she had a blocked fallopian tube. Talk about another slap in the face. If there was any good to come out of this is that now the insurance company was going to pay for the IVF and PGD as she was now considered infertile.  A month later she had laparscopic surgery to remove the blocked fallopian tube and half of an ovary.  She also had a small metal clamp placed on her other fallopian tube. You truly are a WARRIOR babe!

Now we are finally ready to begin the IVF process with 1.5 ovaries.  With 1.5 ovaries it could make the IVF and PGD process difficult because we would be needing as many eggs as possible.  The first round of IVF we had 4 embryo's who were carriers of CF :) This is really unbelievable as we have read stories that some people who go through the PGD process are lucky to have 1 embryo to implant. We implanted 2 of these embryos and had the other 2 frozen.  Unfortunately, this round of IVF ended in a chemical pregnancy. This was probably the most stressful thing that we had ever encountered. On the brighter side though this meant my wife was able to get pregnant :)

We waited a month after the first round of IVF to start round 2. Round 2 was a little different as not all the embryo's survived to day 3 in order to have a single cell sent to Chicago.  A total of 3 little embryo's made it to day 3 and of these 3 two of them were CF carriers and the other was full blown CF.  This was amazing news!  The 2 CF carrier embryos were implanted and of the two one of them stuck!!!!! :)

We could not be more excited that our dream was coming true!!!!  We know that we our having a GIRL and we cannot wait to meet her!!! (Due Date October 23)  Dad got to pick out the name so she will be called Alayna Marie :)

When you feel that you have the whole deck of cards stacked against you, you can still beat it.  Our journey is like no other and through this journey it has brought my wife and I even closer!!!

Maria you are my true inspiration everyday :) To go through this you have shown me that anything is possible and to never give up hope! Thank you God for giving me this wonderful person in my life!!!!!

77 comments:

  1. Your story gives me hope for our IVF process! Thanks for sharing your story. :)

    ReplyDelete
    Replies
    1. Colleen, I'm glad you read our story!! The reason I shared this was to give others hope that this process CAN and WILL work. Every where Maria and I go we share this store of hope with others who are struggling with fertility. I will be following your journey Colleen. If you ever have a question you know where to find me. Do not hesitate to ask any question!!!

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    2. Milann Best IVF Center in Bangalore gives you the kind of support, for IVF process is very taxing mentally and emotionally.

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  2. WOW. Maria really is a strong woman!! I can see what you are talking about when you say emotional roller coaster! What a sweet little blessing Alayna is though. I am sure she was worth every ounce of that energy, money, time, and heartache! What an inspiration your family is. PS. I love her name!

    ReplyDelete
    Replies
    1. Maria is my ROCKSTAR in life!!! It was the most emotional journey we have ever been on in our life. Alayna is a miracle beyond words and I think about that every single day! We will never forget the journey and the blessing we were given in our life!! Alayna was worth EVERYTHING we went through!!

      I'm glad you like her name. I was the one who thought of it myself and Maria approved :)

      Delete
    2. Hi friends i have read this. it is so nice and i am feeling glad to inform you all the we are running an IVF clinic in Nepal. You can contact us:- http://fertilitycentrenepal.com/egg-donation-clinic-nepal/
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  3. Hey, I was very interested in reading more of your story after our conversation on facebook the other day. Wow! What an adventure for you guys! I think you were right when you said this might be a contraversial topic for some, but it is clearly what felt right to you and your wife... and that is what really matters! I'm so happy things worked out (after a few bumps in the road, that is) and you're now holding that sweet miracle baby in your arms. Thanks so much for sharing your journey with all of us!

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  4. John, wow what a journey! I defenitly took my Trying to conceive for granted after reading this!!! You & your wife really have a special story!! You give hope to a lot of people!!

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  5. Hi John, my name is Maritza Van Staden and I have just finished reading your story. It is great to see that CF cariers can conceive and have children. My husband is a CF carier, I have been tested and are not a carier. We have just been through 3 IVF cycles without success and are a bit down on our luck at the moment. We have done the cycles through public funding and now have to go private if we want to continue which costs a lot of money. It has been a dream for us to have even 1 child since we got married and I guess age is starting to count against us now as we are both 38 this year. We are a little bit at odds what to do from here and just trying to find out about other CF couples and what worked for them regarding getting pregnant.
    It is really hartening to read your story and to see that there is hope for some. Thanks for sharing.

    ReplyDelete
    Replies
    1. I'm glad that OUR story is helping people through the road of IVF! Never stop dreaming to all of you :)

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  6. Thanks for Sharing It this is Good Blog About IVF.Ivf New Jersey

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  7. Hi John
    Thanks for all your information and a very interesting and happy story.
    It's my son and daughter in-law who are just starting this process. They both carry d508. My grandson has CF who is now 5. I think she might have trouble with her insurance as she is fertile but doesn't want to risk another child with CF.

    Liveinhope

    ReplyDelete
    Replies
    1. Thanks and good luck to your family :)

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  8. hey John I am new to the cf site and am finding it very interesting my son has cf and is 26 years old he is planning to marry in October and would like to start a family as soon as he can he doesn't know if he can and has had fertility tests done but they decided to wait till after their wedding to find out if for some reason they cant have kids do you know if there is any help financially for people with cf to have children would be really interesting to know hopefully you can help thanks

    ReplyDelete
    Replies
    1. My advice for your son is to check into their insurance plans. I know if you live in Massachusetts the insurers have to cover fertility treatments. Any financial assistance is truly beneficial as this process costs thousands and thousands of dollars. I also would suggest him talking with the fertility doctors at the clinic they choose to use. They may have a program at the clinic to help offer some assistance or a free IVF round it all depends. I know at our clinic the doctors would choose someone every year to fund the entire process. You don't know if you don't ask.

      As for any official assistance programs out there I know there is a program called ARC. Here is there website.http://www.arcfertility.com/ I would read through the plans they offer. You can get two IVFS and two frozen transfers for XX amount but when you get pregnant on the first round you don't get the others. Basically its you buy an fertility insurance plan and you have XX amount of tries. BUT be sure the clinic your son uses accepts the ARC program.

      These are the things that come to the top of my head. I wish your son good luck and please send him to my site if he has any questions. I just want you to know that this journey for him and his wife will be one of the most emotional things they ever go through. Please, try to support them emotionally and anyway that you can. I love to talk about fertility so don't be a stranger to questions. Thanks for stopping by to ask theses questions :)

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  9. Great story, congrats to you and your wife. Makes me think maybe there is hope for me!

    ReplyDelete
  10. Thanks for sharing this information. sofatinfertility hospital is number 1 hospital for ivf and infertility treatment. Dr. Sumita Sofat is specialist in ivf, test tube baby, iui treatment, in vitro. In sofatinfertility hospital all these treatment are offer at affordable cost.
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  11. Congrats on your little girl!!! My husband and I are wanting to try IVF next year, I just have a couple of questions about it if you don't mind answering them. I work in a very physical job, I was wondering did the process affect your wife in a way she couldn't workout or do household task? And How long did the third round take from the first shot to pregnancy? Thanks!

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  13. Hi John,

    Congratulations! I'm so happy to have found your blog. My husband has CF and had a double-lung transplant in 2007. We've been together a long time and at the beginning of the year started the baby journey and next week have our first fertility clinic appointment, we're both very excited. I haven't wanted to add my name as we're keeping it very quiet but it's good to hear happy stories. We know for us that he isn't in the lucky 3% but I have faith that it can still happen - fingers crossed!!! I also got checked out to see if I was a carrier many years ago. We thought we'd find out before we started on the baby journey to kind of pre-empt any issues. I hope you and your family have a wonderful Christmas and New Year xx

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  16. Awesome Story!
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  17. Awesome Story!
    To monitor and consider the biological clock is very important for any woman. Unlike men who produce sperm all their life, a woman has a specific duration for getting pregnant had carrying out the whole pregnancy procedure successfully. Indeed the fertility varies from body to body but the timing is an important factor to consider while one is planning to conceive.

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  21. Hi!!! your post gave me hopes,I have not disclosed to any of my family members that i am going through this process and i dont have anyone to talk to ..... feeling very nervous .... i told my husband that the changes of the succesful IVF is 0nly 35 % and he said that dont worry we will be in that 35 % :) ... pls do share some stories which are about successful IVF ... cause right now reading the negative outcome is making me very nervous. .

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  63. I want to use this means to let the world know that all hope is not lost Getting pregnant after having tubes clamped and burned, I know IVF and Reversal could help but it way too cost, i couldn't afford it either and i so desire to add another baby to my family been trying for 5 years, not until i came across Dr.AGBAZARA TEMPLE, who cast a pregnancy/Fertility spell for me and i got pregnant.l hope that women out there who are going through the same fears and worries l went through in GETTING PREGNANT , will find your contact and be happy like me as i drop it here on this site, and solution will come to them as they contact you. Thank you and God bless you to reach him email via:
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