For me, it always feels that way. My clinic is an hour away in the city which always has outragous traffic. So the drive alone to actually get to the doctor and back home is at minimum 2 hours. Throw in another hour on top of that to see the Dr. and have a PFT. OK, enough of my time commitment story. I am sure others are in the same boat as me.
Yesterday was a big day for me. The day was very busy since it was my wife’s birthday and CF clinic day. I was hoping for an excellent report from the Dr. as I wanted to give Maria a gift of my good health. (For those of you who did not read my prior post, yes my wife is awesome and suggested that I go to the doctor on her birthday)
As always, my weight is stable actually I gained two pounds. I now weigh 166 lbs. and I do not want to gain any more. It must be that sympathy pregnancy weight gain that I am experiencing. I know I am a lucky CFer because there are many of you who struggle to maintain weight but not this guy. I actually once was on a diet with the wife. Yes, a CFer on a diet I know it sounds really odd.
On to my lung health. The doctor listened to my lungs and he said I sounded EXCELLENT. There was no crackling or rattling in those wind bags. I also asked what bacteria was in my last culture. I have been culturing the same bugs for awhile now. Staph and Acinetobacter (it has a longer name) are my bacteria friends. Some of you may wonder what about Pseudomonas aeruginosa? I have cultured Pseudomonas a few times but have not seen this bacteria in a while (Doesn’t mean that its still not in my lungs). My doctor believes that the acinetobacter has killed my previous Pseudomonas bacteria . I know many of you who get Pseudomonas get it and never can get rid of it. I thought I was going to be in this same boat with Pseudomonas. Whatever it is I just thank God it has not returned!
Now time for that good old PFT box. Since adding HTS to my airway clearance I have been praying that this would improve my PFT score. I have been using HTS for a month and a half now and yesterday was the true test. The last time I was at the CF clinic my PFT FEV1 score was 68. I have been blowing around 65-68 the last year or so. I was really nervous and excited to have a test yesterday. The highest score that I blew was a 72!
I’m OK with the results because it shows that my lungs are going in the right direction. Just maybe this salty mist is working for me. I truly feel I could actually get this value higher. To be honest I think technique plays a major factor in this test and also the person who administers the test. Yesterday, I had my not so favorite respiratory therapist administer the test. Back to my technique, I always feel like I am straining my vocal chords/throat!! Anyone else?
PFT’s have always been a challenge for me. I think the biggest obstacle for me, is I focus so much on the score compared to how I actually feel. My doctor has told me before that the PFT is just one part of the puzzle when putting together my health plan. But for me I just focus so much on this score and I really do get depressed when I feel my numbers should be higher.
Yesterday, was different for me. I was not depressed. No medicines were prescribed and I received a good report from the doctor. I think I am more optimistic for my next PFT test because I feel I can increase my score with more HTS in my airway clearance in the coming months. How do my other cyster’s and fibro’s feel about PFT’s?