Tuesday, September 3, 2013

Month of Thankfulness - August

It looks like I fell off the monthly thankfulness blogs I had been doing.  But I wanted to get back on the band wagon again.  As we all know we have so much to be thankful for every day we get out of bed.  So take a moment and think of a few things that you are thankful for today.

As many of you know, Maria has been having a rough battle with her liver enzymes ever since Alayna has been born.  I am so thankful for a wife who is determined and motivated to do whatever she can to find what is causing all this.  We are still waiting on the results of the liver biopsy but we should know very soon. I hope by the end of the week!!  I will post what we find out from the appointment. 

I have to say I have an awesome wife.  There truly is no one like her.  The other night she was cleaning my nebulizers with a tooth brush! Yes, a toothbrush. They have never been so clean before.  I just have to say my wife is an amazing lady.  I LOVE my CF WIFE!

I am so thankful for a community (CF community) who cares!!! Many of you have asked not only about how I am feeling these days but how Maria is feeling and if we have any results from the biopsy.  You are all truly FANTASTIC people.  Even though we have never met we all have a bond that really no one outside the CF community would ever understand.  I am so proud to be a part of it and to share my life with all of you.  Thank you again for keeping this family in your thoughts and prayers.

I know not only am I thankful for this person but I know Maria is.  Maria is seeing a physical therapist and it is really helping her.  Every week Maria gets to spend some time with whom she calls her sister.  Yes, Maria’s physical therapist and her are basically identical.  Honestly, it is really great to hear how much Maria and her have in common.  Not only do CFers come to this blog but now many others do.  I find it great to be sharing our life with many people around  the world including my wife’s physical therapist.  You just never know where you will meet friends in your life.  Also, thank you for reading my blog : )

I am so thankful for a happy baby. Alayna is really the BEST baby we could ever ask for.  She is always full of life and energy every day.  I hope she continues that for years to come.  I honestly don’t know where the time has gone though.  Soon she will be 11 months and then she will be 12 months!!!!!  I still remember that day that I held you Alayna for the first time.  Something I will NEVER EVER forget!

I have been compliant, committed, dedicated for the past 211 days or 7 MONTHS without missing a single treatment, pill, or neb.  I have to say it’s not easy at all with a baby now when it comes to my CF life.  (That will be another blog topic for another day). I have done vesting at 2 and even 3 am. I really have to thank my wife for telling me to get out of bed.  She knows I am nuts about being compliant.  I am just so thankful that I have been able to keep up with all this CF stuff while being a dad as well.   I couldn’t do it without the motivation I get every day from Maria and Alayna.  These 2 girls make me want to be here for 1,000 years. 
I am so thankful that people in this CF community ask me QUESTIONS! Yes, I know sounds crazy but I love to have people ask me questions about what I am doing for my treatments.  I also have people in the CF community come to me to find inspiration and motivation.  To me that makes what I am doing on blogger, facebook, forums all worth it.  In my eyes, I am just being me trying to give 100% every day I get out of bed.  If I can encourage, motivate, inspire just one person that is what counts when it comes to putting my life and CF life out in the public eye. 

Lastly, I am BEYOND thankful that I was able to shake my recent cold WITHOUT taking any antibiotics.  In the world of CF that is pretty rare.  For us fibros and cysters when we get a cold it really takes a toll on our lungs as we all ready have bacteria in there and then our body has to decide what is more important to fight off the cold or our CF bacteria.  But anyway I am back to 100% John.  I honestly think that has to do with being compliant and nebbing my HTS!!!!
Vesting with Daddy!!


  1. Your love for your wife and daughter is so sweet. Sending good thoughts your family's way.

  2. I think that you need a little (or big) celebration when you reach 365 days compliant!! That is very impressive. John, you are so kind, caring, and easy to talk to. YOU are a role model in our CF community. And so is Maria the way she supports and stands by her CF man! Actually, can she train my hubby on cleaning nebs? HAHA. That is a joke, but honestly-- you both inspire people just by being YOU!

    1. Christina, thank you for taking the time to read these posts. I always love your comments. You are too are very inspiring! Being YOU is the key in life.

  3. Great post! Adorable pics:) Keep up the great work!!

    1. Thanks for stopping. Keep up the great work you are doing with your son!!