Many
people are interested in this new device called the Afflo vest. For all of us who are involved in the CF
community this is something that everyone wants to know more about and even
try. I am writing this today to provide
my honest opinion and feedback on the Afflo vest.
For
starters let me begin by stating I DO NOT represent Afflo vest, its company,
employees or any other affiliated party in any way. I did purchase this device for all those who
may be wondering! What I am about to
share with you is MY unbiased review and opinion of the Afflo vest.
I
will start by listing the pros/cons. Under each of the pros/cons I will provide
more detail.
PROS
1.)
Rechargeable
lithium Battery powered vest with optional cigarette lighter charger (12v) and
electrical plug in option.
I
think from the dawn of the traditional vests we all wanted something to be more
portable with the same effect. For me, I
believe the Afflo has accomplished this.
I no longer have to sit at my desk and surf the net. I have now, been able to bring my Afflo
basically anywhere I go. Just the other
day I was able to “Afflo” (get used to the NEW word Afflo, Affloed, and
Affloing as it will be used often) while supervising my 1.5 year old daughter
while my wife was cooking dinner. My
wife loved this 100 times over as we were killing the vest and the dinner with
one stone! In the days of old with my
traditional vest this never would happen.
I was confined to my office and not being a productive husband or
father.
The
cigarette lighter charger is wonderful if your lithium ion battery is running
low while you are traveling in the car. (The lithium ion battery will last you
about 4 treatments if you use it for 20-30 minutes a treatment.) Yes, I even have affloed now many times in the
car. In fact, this is something I think
that will only help us get in our treatment. Many of us travel to work or run
errands on a daily basis. Instead of
just sitting in the car listening to music you can now get your Afllo and get
your airway treatment in. Oh and you can
also listen to music, neb, and afflo in the car without cranking the music up
to its highest volume.
To
me the ability to be portable and get treatments in is a game changer
especially for many of us who either have busy lifestyles raising children,
going to work, and running errands. There will now be NO EXCUSE to miss a
single treatment with the Afflo device.
2.)
No tubes or
electrical cords!
In
the traditional vest system you are tethered with a tube or two and an
electrical cord. The Afflo has no tubes
or cords. No tubes equates to no more of
those tubes popping off during vest time.
I always hated it when the tubes popped off and deflated my vest. No tubes plus no electrical cords equals
doing my treatment anywhere on earth assuming my battery is charged.
3.)
No inflatable
air bladder like traditional vest systems.
The
traditional vest systems use an air bladder system that is required to be
filled with the air compressor and generator.
This air bladder system I feel squeezes us way to hard and suffocates
many of us while we try to neb and receive effective airway clearance. The Afflo does not have an air bladder system
nor does it squeeze you to death like the traditional vest. I feel that without the air bladder
strangling me that I am now able to get an effective nebulization in compared
to the traditional vest. This is another game changer compared to traditional
vests.
4.)
Very quiet
during operation.
As
I mentioned above this has to be the quietest vest on the market. There is no
more cranking up the volume on the radio, tv, or computer to hear your favorite
show, music, or game. I LOVE this about
the Afflo. I can now watch tv or listen
to music without damaging my hearing or waking up our sleeping toddler. The quiet operation will be so welcomed by
many parents with CF as they care for their child!!
5.)
Afflo vest
targets all areas of lungs. Chest, lower
lobes, back etc. whereas traditional vest system was suffocating.
Unlike
traditional vest systems, the Afflo vest targets all areas of the lungs. In fact, since its so portable you can lay
down on your side, on your back back, or on your stomach, or even do a head
stand! With all the various treatment settings you can really feel all of your
lung lobes getting a full airway clearance.
Again, the Afflo is superior to me in this category compared to any
other vest.
6.)
3 treatment
settings with 3 intensity levels
As
I mentioned above, with all these settings and intensity levels I feel that my
lungs are receiving superior airway clearance. In fact, my lungs have never felt
this clear in years! There is a soft,
medium and intense intensity setting.
The range of hz is 5 for low then about 13 hz for medium and 20 hz for
intense. The 3 treatment settings are
drainage, vibration, and percussion. I
feel the Afflo vibrates your lungs so differently compared to the traditional
vests. You receive the same voice
vibration like you do traditional vests so I know something is being shaken up
inside.
7.)
Ease of use and
travel ability
The
Afflo vest is a very easy device to operate and use. If you have ever used a traditional vest
before you will have no problem using this.
It also comes with a nice bag that you can use for traveling. Since the vest itself weighs a little less
than 10 pounds it’s not heavy to carry a long. I have even used the Afflo
walking around the house and felt that it has been just as effective as sitting
down. For all the active CFers out there
I assume you could even use this on the treadmill or riding a bike.
8.)
You can nebulize
while using the Afflo
To
me another game changer is you can nebulize effectively while using the
afflo. I always felt the traditional
vest squeezed me so much that it was difficult to effectively inhale and exhale
a nebulized medicine. With the afflo you
can still get a good deep breath in and feel the vibration in your lungs.
9.)
Compared to the
traditional vest Afflo is superior.
The
point of this last bullet is just for me to say I feel that the Afflo is
superior to the traditional vests on many levels. The ease of mobility now with Afflo cannot be
matched. The way the Afflo hits all of
my lung lobes is truly a game changer.
The mucus clearance and mucus secretions I have now are much thinner and
easier to get out of my lungs.
CONS
1.)
The Afflo may be
too heavy for kids and cf patients who may have declined health. That is if
they want to walk around with the afflo vest on.
Currently
Afflo vests DO NOT fit kids below the age of 8 years old. So there is a con for all the parents to
young cfers. But I do hope the maker of
the Afflo vest will figure a way to make them for younger children.
Yes,
one of the pros is that this device weighs 10 pounds but that weight may be an
issue for anyone who is experiencing declined health. You can always sit down
with the Afflo and watch tv, read a book, use the computer, or even lay
down.
2.)
The lithium ion
battery could last a little longer or maybe have a more visible reminder to
charge the battery.
Any
battery operated device will have limitations.
So yes, I wish the battery lasted for 10 treatments but I also do not
want to carry a 5 pound battery around either.
There is a battery indicator light on the battery to let you know when
it needs recharged. But in today’s world
where people want immediate results or access like a cell phone battery life
this is a shortcoming. I don’t see it as
a problem just something you have to remember to do, plug in that battery to
recharge. But there are also regular
wall hook ups and car adapter to use if you forget to charge the battery.
3.)
I think there
should be more intensity level settings.
Yes,
there are 3 intensity levels but many of us are used to the traditional vests
where you can select the hz and frequency.
I feel the soft mode doesn’t do anything for me. I mainly use the medium and intense
modes.
4.)
The buttons
holding the battery in place are tough to undue.
The
buttons holding the battery are not very easy to unsnap. Yes, that is a picky statement but something
I have observed while using the afflo.
5.)
Afllo needs to
create a pouch for the nebulizer machine or offer a nebulizer machine that runs
on batteries as well.
A
downfall to the Afflo is if you want to neb and walk around the neighborhood
you need another battery operated compressor device. Thankfully I have the Pari Trek which can be
operated with a lithium battery. Also, a
pouch to put the compressor in the Afflo would be handy as opposed to carrying
the compressor around.
6.)
My biggest con
comes from what I have heard drs and respiratory therapist saying about Afflo.
DO NOT JUDGE A BOOK BY IT’S COVER!
This
by far is not a CON that Afflo has, but a CON I see in the CF community. There are so many doctors and respiratory
therapists claiming the Afflo isn’t as good as the traditional vest treatments.
Hmm, lovely! So we have the doctors and respiratory therapists not buying off
on the Afflo. Why is that? Do they
themselves have CF? That is the first
question I would ask. How would a person
without CF be able to tell you that the old school hand PT is better than the
traditional vest and the traditional vest is better than the Afflo? They honestly cannot tell us that. There is no better way to know if this device
works for you unless you actually use it.
I
like to compare the traditional vest as the typewriter and the afflo vest as
the computer. We know the typewriter is
old and out dated because the computer has more to offer us. This is how I feel about the afflo. There is a reason why we no longer do
traditional manual PT and there will soon be many people who will switch from
the traditional vest to the afflo.
JOHN’S NOTES:
Again,
all this is based on my own personal opinion and use of the afflo device. As many of us all know that no two CFers are
alike so the only way to know if this device works for you is to try it. I feel though that I was a good subject to
base this review on as I have been 100% compliant for almost 500 days. I also made a point to discontinue the use of
my traditional vest to see if I noticed afflo vest making a difference.
I
can honestly say after using the Afflo for a little over 2 weeks now I wouldn’t
ever go back to the traditional vest. My
breathing is so much better and my mucus is basically non existent. Yes, the first week or so I was clearing many
old mucus plugs and could tell something was working. I have also been able to get airway clearance
in the car and outside with my daughter.
So I have increased my treatment time in a day from 1 hour to about 1
hour and 15 mins. More treatment is only
better for my lungs!
I
will leave you all with this exciting news I have had with my at home PFT
monitor. I actually sent these below paragraphs to the manufacturer of Afflo……
In fact, I have an at home
lung function monitor to use just to gauge where my lung functions are before I
go to clinic every 3 months. For all
those who are not familiar with lung function testing, it is a marker of how
much damage has taken place in your lungs.
A reading from 80-120% FEV1 is considered a normal lung function
score. For many of us in the cystic
fibrosis community we experience debilitating lung infections that decrease our
lung functions overtime which can result in lung transplants and also death.
The last official CF
clinic I had was in mid April 2014 and I blew a 74% FEV1. But I still wanted to get my FEV1 back into
the 80s or as high as possible.
Yesterday, I put my lung function to the test after using the AFFLO vest
religiously for these past 6 days. I was
beyond shocked to see a number I have not seen since I was a teenager. The number I blew was 81% FEV1! In fact, I
blew again and produced this same result.
I told my wife my score
and her first comment was this…..”WOW, the last time you were in the 80% was
when I met you back in high school!” Yes, that was when I was 16 years
old. It has been 13 years since I blew a
number in the 80s. All I can say is I
feel like I gained back 13 years of my life!
The AFFLO vest is
something that is working for me and I feel it will work for many other cystic
fibrosis patients around the world
Just as the title
says “AFFLO Vest – It’s changing my life!”
I want you all to try this device to see if it will work for you. The people at the Afflo company have been so
helpful and wonderful to work with. If
you would like to see if you can get an Afflo call this number, 1-888-711-1145.
http://www.afflovest.com/
http://www.afflovest.com/
I have been wondering about this vest! Glad to hear it is working so well for you!
ReplyDeleteGlad you read this IH! I think this would be so helpful for you as a mom and running around with your little one. If you are interested to see if you qualify for the Afflo call the 800 number at the bottom of the blog post. They are wonderful people to work with.
DeleteI think there is a benefit to being mobile while Vesting. I am always sitting on my butt while vesting and often think it would be better if I could be moving, but the Hillrom Vest tubes are so short!
DeleteThat's awesome! Being able to do the vest on the go with a toddler would be huge. Were you using the Minnesota protocol with your old vest?
ReplyDeleteYes, Cindy doing the vest while chasing after Alayna or even moving around the house has been so NICE! I was using the Minnesota protocol with my prior vest. If you are interested I suggest calling the 800 number at the bottom of the blog post.
DeleteThat's interesting - I was curious if you were using the Minnesota protocol because switching to that from a basic 3-intensity routine made an ENORMOUS difference in my airway clearance, so one of the hesitations I'd have about the Afflo vest would be the inability to follow the Minnesota protocol with it.
DeleteAll I know is I don't miss the Minnesota protocol. I am sure the Afflo will not work for all people. The only to know is to try it out.
DeleteExcited by this for my granddaughter with cf. She is only 3 1/2 now so will have to wait, but the Afflo should only improve by the time she can use it. It is really hard for her to sit still for 1/2hr twice a day now will only get worse as her time increases. Thanks for sharing your personal experience for our benefit.
ReplyDeleteJohn,
ReplyDeletedid you hear about home salt therapy from salinetherapy.com? ... that is also very helpful in CF that you may want to try and maybe review.
Hi John,
ReplyDeleteI am so interested in getting an Afflovest! However, when I talked to my cf clinic they said that the Afflovest is not effective enough for CF patients. Apparently the respiratory therapist in the CF world does not recommend it so my cf clinic doesn’t either. Also since I already have a vest with a lifetime warranty, my insurance would not cover it. I was wondering if you ran into these same obstacles and how you got around them.
Don't give up... my son's Drs. and RTs said the same thing..."there's not enough data" which may very well be the case, but the data that is out there is promising and the impact on quality of life could be significant. Also, have a distributor check with your insurance company. we were also told it would not be covered, only later to find out it would be because the hillrom vest was over 5 years old. the lifetime warranty, in our case, was irrelevant.
DeleteI just wanted to extend my thanks, I found this link on the CF connect group and was exceptionally grateful to find someone who is willing to try these new therapies and/or products and offer an unbiased opinions it significantly helps me (being the parent of a CF child who doesn't know much about it) and its refreshing to have someone so positive, thank you
ReplyDeleteI just receive my AFFLO 2 days ago. The opinion of my CF center mirrored what your experience was, that is was said to be too heavy and did not effectively cover all the chest with that gap in the front of the jacket, yet I still requested a trial. I have it for 90 days to evaluate, then I'll decide. THANKS John as I sent YOUR post to both my CF Team AND to the Home Care Company who had never heard of the AFFLO until I pushed for them to please get me one.
ReplyDeleteMy name is Jason Rhoades. I am currently the San Antonio, TX rep for AffloVest. We have the Clinical studies to prove it works. This is such an amazing product. Please call me to setup an appointment. If you are a patient, dr office, or support group, please contact me to setup a presentation @ 210-838-6616.
ReplyDeleteMy name is Jason Rhoades. I am currently the San Antonio, TX rep for AffloVest. We have the Clinical studies to prove it works. This is such an amazing product. Please call me to setup an appointment. If you are a patient, dr office, or support group, please contact me to setup a presentation @ 210-838-6616.
ReplyDeleteAre you still liking the Afflovest? How are your numbers now? I just ordered one and am very excited to have more flexibility. I had a rep come meet me so I could try one on. I really liked the way I could feel the vibration in my lungs.
ReplyDeleteJohn, my son; age 33 is blowing 24% and talking about lung transplant. We would be happy to get him back up to 34% which is where he was before taking the drug Orcambi. I believe he lost 10 to 15% of his lung function because of the Orcambi. He does not and has not had a lot of lung infections throughout his life. I'm at a point to try anything that will help and not hurt. Dr. has always had negative on anything that he himself has not tried. Thank you for your story. My son is very strict on his treatments and exercise.
ReplyDeleteI have wore this vest during intercourse and is extremely helpful maintaining my manhood.
ReplyDeleteWow, thank you for sharing this
ReplyDeleteWeight Vest Training and Weight Vest Pros and Cons
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ReplyDelete