I will start with the family. Alayna continues to keep us very active at
home. She never stops moving or I should
say getting into something when she is NOT sleeping. I know I never did a 24 month blog but I can
say she is one healthy tall and at a perfect weight for her age. We have successfully mastered potty
training. I don’t recall what actual
month that took place but she basically was potty trained before she was out of
diapers. The potty training was an easy breezy
experience and I have to give credit all to Maria as she really did most of the
training. No more diapers minus the
nighttime diaper and she doesn’t even pee at night equals two very happy
parents. Now only if we could get her to sleep in her
own bed all night we would be beyond happy.
Note to all future parents out there………NEVER let your child sleep in
your bed. Oh wait I am getting the
payback for what I did to my own parents.
In other Alayna news, she continues to learn new
things. She talks in full sentences. It’s just amazing to see in less than 26
months she is already like a grown child.
Where did the baby go???? She still loves dancing, singing to any songs
especially Taylor Swift. I know we will be preparing to attend many dance
lessons and shelling out lots of money for it. But it will be great! The more active she is the better! I could go
on and on about all the new things that Alayna has mastered but that would eat
up my entire blog. We are just so
thankful to have her in our lives. She
has truly completed our life!
I cannot ever forget about my best friend………..I am so grateful
to be married to my best friend! Yes, if
you have the chance to marry your best friend I suggest it. Why? I say you will find marriage bliss if
you marry your best friend. I could
truly never express in words what she means to me. You know the PRICELESS commericials…….Let’s
just say I could make one for her because honestly I KNOW I couldn’t have found
a better best friend, a wife, a mother, and soulmate!
As for Maria’s health some of you may have wondered what
ever happened to all those liver enzyme tests.
We are happy to say that those elevated liver enzymes are no longer an
issue in this household. She is definitely
a trooper with all the obstacles she has had to endure to have our Alayna and
even the aftermath of the birth still lingers.
But maybe just maybe that horrific birth will be a distant memory of the
past.
If you made it this far in my blog post thank you. Now if you want to read about boring old me…..Thanks
for following along. I promise I will
not bore you more than need be.
I continue to live a beyond busy life as I said above. It’s a challenge to fit everything in a 24
hour day. I know many of you know who work full time, have a child, have a
marriage, try to get enough sleep, stay on top of our CF with treatments etc.
understand where I am coming from. There
are some people who ask me how do you function every day John? My answer to
that is I don’t really know how I do it but I just keep pushing on. I do have to give a big THANK YOU to Maria
who really keeps this family functioning at a high level. If I didn’t have her in my life I think we
would all be a mess.
I can tell you I am feeling fantastic the last few months
and weeks. I have actually seen my at
home PFTs hit 79%. It’s not official but
I consider it accurate as the device I use is basically identical to readings I
get at CF clinic. I haven’t seen the
close to 80% mark since last July. I
credit the increase in PFT to my commitment to using the affLOVEst every day
and 4 vials of HTS a day. Speaking of
commitment to compliance, my compliance streak ended this past November. I successfully did all my nebs, vest, and
pills for well over 600 days. This is
something I am beyond proud of because I don’t know how I find time to do all
that I do and have time to NOT miss a treatment of pill. I have
felt fantastic the last 600 plus days! I am due to go back to CF clinic near the end of the month. So we will
see what is new there. I hope to have a new blog come out of that appointment.
The future of this blog…………I don’t know how often I will be
blogging but I do know I will continue this for well into the future. As long as I know there are readers out there
and I have the time I will write. So
going forward………I have some more CF interviews I need to post ( I have NOT
forgotten about you). I get a good
amount of questions on Facebook about things I do to stay healthy or what
devices I am using so I think I should write a blog or two about those Q &
A’s. I also will be giving an update on the
afflovest which I still LOVE! I hope
those blogs will be useful to my readers out there. If there are any topics you would like for me
to cover feel free to comment below.
Until next time…………..Keep LIVING out your DREAMS and
FIGHTING as hard as you can for more TOMORROWS!
