tag:blogger.com,1999:blog-7869955268765485323.post4583928217838531971..comments2024-03-25T05:31:05.321-04:00Comments on Living My Dreams With CF: Pregnancy: Final Trimester Week 31 & VideoJohnhttp://www.blogger.com/profile/06866357988143268043noreply@blogger.comBlogger8125tag:blogger.com,1999:blog-7869955268765485323.post-40938325222251957632012-08-30T00:17:04.425-04:002012-08-30T00:17:04.425-04:00Cindy, thanks for taking the time to reply back on...Cindy, thanks for taking the time to reply back on my blog. I wonder why I was having issues posting to your blog! I'm glad Kalydeco is working for you at least you see it as the glass half full. I find it very interesting how CFers all different even though they may have the same mutations. <br /><br />Lets hope Vertex will get the magic pill out soon to all the DF508s. <br /><br />Thanks for the well wishes on the rest of the pregnancy:)Johnhttps://www.blogger.com/profile/06866357988143268043noreply@blogger.comtag:blogger.com,1999:blog-7869955268765485323.post-2641890117192379642012-08-28T11:21:40.485-04:002012-08-28T11:21:40.485-04:00John, so for some reason my blog seems to be eatin...John, so for some reason my blog seems to be eating the comments you leave! I get them to my email but they don't show up at my blog. So I wanted to respond to your comment about Kalydeco! I do feel different in starting, although not as dramatically different as some people. I have a very damaged pancreas and absorb meds & food very poorly, so I suspect that my benefit is not quite as strong as some. But obviously, it's still impressive!!! I have a "Kalydeco" label on my blog and in previous posts I go through some of the changes in how I feel - the most notable one being exercise tolerance, which is awesome. However, I still do cough all the time, still cough up nasty crud, still wake up in the night coughing, etc. But even if the improvement I've had is all I get... I'm happy! And from what I've read, there should be a Vertex drug for DF508 within the next 4-5 years at max. They are really trying to rush them through the pipeline!<br /><br />Good luck with the last stages of your wife's pregnancy! Yes, my doctor was just telling me yesterday that it's possible to do the Vest while pregnant with the bottom clasps undone. (Though I already knew that from obsessive research, LOL.) I also think Alayna is such a lovely name!cindy baldwinhttps://www.blogger.com/profile/01173344689280406987noreply@blogger.comtag:blogger.com,1999:blog-7869955268765485323.post-46957037874132128912012-08-27T09:16:27.083-04:002012-08-27T09:16:27.083-04:00InhalingHope, yes its homestretch time and Maria i...InhalingHope, yes its homestretch time and Maria is feeling it! She isn't very comfortable at all. WOW so you had no vesting for about 10 weeks? I love my vest and do not go a day without it. <br /><br />Sorry to hear that the video didn't work for you. I hope you got to see it on your computer :)Johnhttps://www.blogger.com/profile/06866357988143268043noreply@blogger.comtag:blogger.com,1999:blog-7869955268765485323.post-45432590684289024112012-08-25T15:16:32.010-04:002012-08-25T15:16:32.010-04:00Couldn't get the video to work :(, but I am on...Couldn't get the video to work :(, but I am on y phone so that's probably the issue. I found by 30 Weeks I couldn't Vest anymore. The baby would stretch out as far away from Vest (painful!) and I was worried I was making her uncomfortable. It didn't fit well even with the bottom unbuckled anyway at that point because I was so big. As far as breathing goes I was lucky to carry low enough that it was never a big thank goodness! Your wife is in the home stretch which is the hardest part, but she is almost done yay! -not logged in on my phone, but this is InhalingHope :)Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7869955268765485323.post-34611952500600491912012-08-25T10:51:49.200-04:002012-08-25T10:51:49.200-04:00Thanks Megan! I'm glad that the video worked f...Thanks Megan! I'm glad that the video worked for you. It makes sense about the Vest how you would undo a few latches. Vesting is like rocking the baby to sleep :)<br /><br />We cannot wait to meet Alayna! October is right around the corner. Johnhttps://www.blogger.com/profile/06866357988143268043noreply@blogger.comtag:blogger.com,1999:blog-7869955268765485323.post-9154325382200969882012-08-24T12:42:15.342-04:002012-08-24T12:42:15.342-04:00What a GREAT video!! As for the Vest, we can wear ...What a GREAT video!! As for the Vest, we can wear it while pregnant, but I believe some women wear it with a few latches undone at the very end of the pregnancy. The doctors say it is safe, and many women say the baby is used to it and it soothes them when they are born. I find that interesting. :) <br /><br />I can't believe you and Maria are so close to meeting Alayna! I can't wait for the next update!Meganhttps://www.blogger.com/profile/09857757026387771028noreply@blogger.comtag:blogger.com,1999:blog-7869955268765485323.post-17812710369859307382012-08-23T09:37:57.123-04:002012-08-23T09:37:57.123-04:00Thanks for stopping by mogzi. I am glad that the v...Thanks for stopping by mogzi. I am glad that the video worked for you! Thank you for the well wishes as well!! Johnhttps://www.blogger.com/profile/06866357988143268043noreply@blogger.comtag:blogger.com,1999:blog-7869955268765485323.post-24219573261851808862012-08-23T03:36:12.317-04:002012-08-23T03:36:12.317-04:00Alayna is a beautiful name, good luck with everyth...Alayna is a beautiful name, good luck with everything! Your video was lovely too, how exciting!mogzihttps://www.blogger.com/profile/03522790003935620471noreply@blogger.com